Our Journey with Apraxia and Special Needs
To start this blog with our journey of Apraxia, I feel like I should start at the beginning. This will probably be broken up into a few different parts.
So, Addie is our first born. When we got pregnant with her it was a total surprise but I couldn't have been more happy. My pregnancy and birth with her was normal. Everything was normal until about 9 months old.
We realized around this time that she wasn't doing as much as she should be doing. But as a new mom I had no idea what was normal, our pediatrician at the time just said she was late doing things. She wasn't babbling like most babies do and she wasn't crawling, she really started crawling, and not just army crawling around 13 months. At 12 months she started getting major ear infections, she still wasn't walking, she would hold on to things but never let go. She had an ear infection every month until 18 months when I finally asked the pedi to send us to an ENT. We got tubes put in and the very next day she started letting go to walk.
After the tubes we thought "yay!" everything will get better faster. That's what we were told. We did get Birth to 3 services provided to try to get her caught up with her motor skills and her language because she still was not talking at all. At about 2 years old I started pushing for her ENT to do a hearing test on her. We still didn't have much talking and she was getting older and further behind. He kept putting it off because he didn't want to put her to sleep for it, we had to have the ABR test. She wouldn't cooperate in the booth at the office and she kept failing the test but they chalked it up to her not cooperating. Finally at 3 her speech still wasn't coming, she said maybe 5 words non of which was mommy, so they finally agreed to do the test.
The ABR test showed that she had Sensorineural hearing loss. They said they were sure she had it since birth and that the hearing screening just didn't catch it. It wasn't a huge hearing loss though and I wasn't devastated about it. I was actually relieved that we might actually have an answer and a solution to start helping my baby girl. We got hearing aids and we kept up with Speech Therapy. Unfortunately this was not the only thing that we were going to deal with our sweet baby girl, she had a long road ahead of her.
She wore hearing aids from 3-5. During that time her speech started coming but there was some very significant delay's.
So, Addie is our first born. When we got pregnant with her it was a total surprise but I couldn't have been more happy. My pregnancy and birth with her was normal. Everything was normal until about 9 months old.
We realized around this time that she wasn't doing as much as she should be doing. But as a new mom I had no idea what was normal, our pediatrician at the time just said she was late doing things. She wasn't babbling like most babies do and she wasn't crawling, she really started crawling, and not just army crawling around 13 months. At 12 months she started getting major ear infections, she still wasn't walking, she would hold on to things but never let go. She had an ear infection every month until 18 months when I finally asked the pedi to send us to an ENT. We got tubes put in and the very next day she started letting go to walk.
After the tubes we thought "yay!" everything will get better faster. That's what we were told. We did get Birth to 3 services provided to try to get her caught up with her motor skills and her language because she still was not talking at all. At about 2 years old I started pushing for her ENT to do a hearing test on her. We still didn't have much talking and she was getting older and further behind. He kept putting it off because he didn't want to put her to sleep for it, we had to have the ABR test. She wouldn't cooperate in the booth at the office and she kept failing the test but they chalked it up to her not cooperating. Finally at 3 her speech still wasn't coming, she said maybe 5 words non of which was mommy, so they finally agreed to do the test.
The ABR test showed that she had Sensorineural hearing loss. They said they were sure she had it since birth and that the hearing screening just didn't catch it. It wasn't a huge hearing loss though and I wasn't devastated about it. I was actually relieved that we might actually have an answer and a solution to start helping my baby girl. We got hearing aids and we kept up with Speech Therapy. Unfortunately this was not the only thing that we were going to deal with our sweet baby girl, she had a long road ahead of her.
She wore hearing aids from 3-5. During that time her speech started coming but there was some very significant delay's.
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