Life in the Here and Now

Wow, so much has happened since my last update. To say that November and December were the roughest months we've had would be an understatement.

We ended up going for the MRI a week after the EEG. The MRI came back great! No tumors, no abnormal growths, nothing to say "here is the reason she is having seizures". Praise God! To have to worry (for the second time in 3 years) that your baby could have a tumor or something bad going on in their brain is not something I would want anyone to go through.

After the MRI they wanted to put her straight on medicine to which we asked if we could do a 24 hour EEG. We wanted more concrete data. We wanted to know how often she was having spikes and if we could catch a seizure for sure. So the week of Thanksgiving break we went into the hospital and subjected our poor 6yo to another EEG. The first one was terrible. I think the second one might have been worse. It was more the getting off and getting the massive amount of concrete glue out of her hair. If I could have cut her hair off and made it easier I would have but unfortunately the glue was in the roots and we just had to deal with getting it out.

 We thought she would like to wrap her dolls head too!

 So many crafts were done this day. So. Many.

 Glen drew on her to help with the putting on of the leads! She thought that was something! Distraction is the best medicine for a 6yo!

 They gave her this hat to cover up her bandages. She loved it. And I thought she looked adorable! 

This bag has the box that has all the wires attached to her head attached to the box. Coming from the box is a long wire thats plugged into the wall. She had to remember to pick it up and move it every time she moved. It was miserable. I feel sorry for the ppl that have to do this for longer then 24 hours with their kids.

The test came back that she was having spikes every second when she is asleep and then 3-4 every 20 second then they would stop then come back when she's awake. So basically, she's having a lot of spikes which equals seizures. The spikes are happening in the part of the brain (prital lobe) that basically makes us human. It's the part that deals with understanding, and motor skills, and speech, etc) So basically every area that she's lacking in. So we put her on medicine in November. 

And let me tell you. We can see a HUGE difference. It's slow and steady but she has come a long way in just 2 months. She's talking more. She's starting to get her motor skills under control. Her understanding has increased. 

She wrote the word "to" all by herself, without us asking her to, and told us what she wrote! To say we were beyond excited doesn't even cover it! She couldn't do this a few months ago! She can also count to 30 and has started adding!

We are so very thankful that we have an answer. We were at the point where we just thought this is going to be what its going to be and we will deal with it but we don't know why. But now we know whats going on and we can better help her and know why things have been the way they are.

We are still praying for a complete and total healing. That one day she will wake up and there will be NO speech delay, no motor delays. I long to hear her tell me stories and to ask questions about everything like her sister does. But right now we are in a "slow and steady" phase and we are so thankful that we at least see that type of progress!